Rare Conditions

Rare conditions in children

Some of our favorite patients and families are those with rare conditions such as congenital malformations, chromosomal abnormalities, genetic disorders, and syndromes.  We manage a wide range of these conditions and personalize plans for each to coordinate care with the specialists that also see these children.  We aid in obtaining and maintaining home nursing care, durable medical equipment, as well as therapies to take the management role from parents allowing them more time and energy for interaction with their child.